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News
Research platform for Sanfilippo syndrome, SanfilippoLINK, is now live and open for enrollment
Cure Sanfilippo Foundation is proud to announce that SanfilippoLINK, a global clinical research and patient registry platform dedicated to Sanfilippo syndrome, is now live and open for enrollment. SanfilippoLINK integrates a clinical data portal and biobank to...
Cure Sanfilippo Foundation develops SanfilippoLINK, an international research-patient platform
Cure Sanfilippo Foundation is proud to announce the development of SanfilippoLINK, a dedicated international Sanfilippo syndrome clinical research and patient voice platform. The goal of SanfilippoLINK is to better understand the evolution of disease symptoms, inform...